9/15/2009

Living Unlimited: New Heights

Living Unlimited: New Heights

Wendy Booker was your typical 44-year-old wife and soccer mom. She had three boys (ages 20, 14, and 9), worked part-time as an interior decorator, and kept in shape doing Jazzercise. Then she got the call. The numbness she had been feeling on her left side was not a slipped disk; it was multiple sclerosis. “I was standing in my driveway, and I burst into tears,” she says. “But then I got this strange feeling in my gut that it wasn’t the end.”

Most people envision a wheelchair when they think of MS, but because of new therapies, that’s no longer the inevitable outcome. Even though Booker had resolved to fight, her first year after the diagnosis was a “pity party.” Her family treated her like a carton of eggs, and she regarded herself as similarly fragile. “It’s a very immobilizing time,” she recalls. “If you look behind, you start mourning what you think you’ve lost, and if you look ahead, well, it’s frightening.”

What pulled her out of it was a call from a friend who had been diagnosed with breast cancer at about the same time. She suggested they run the Boston Marathon, even though neither of them had ever done a 10-K. “To me, it sounded as if she said, ‘Let’s go to the mall,’” says Booker. “I mean, why not?”

During the training and race, which she finished in 4 hours and 42 minutes, Booker discovered something. When she was running, her mind didn’t dwell on the MS. She was busy doing something she enjoyed, and she was able to lose herself in it. Pain bows to passion. It was a revelation, and it gave her the confidence and control to undertake other challenges—like climbing mountains.

Since 2001, when she just as naively agreed to attempt Mt. McKinley (“I didn’t even know it was in Alaska”), she’s been on a mission to climb all Seven Summits. These are the highest peaks on each continent. She’s already done six and, next year, will attempt Mt. Everest for the second time. (Bad weather forced her down from 22,000 feet earlier this year.) She brings her medications on these expeditions and has injected on glaciers at 20,000 feet.

Booker, who lectures and also runs a children’s foundation (wendybooker.net), lives by three guiding principles. She contends that anyone can use them to plant a personal flag atop any metaphoric mountain.

Self-discovery: “Look around with wide-eyed intrigue at the world. Life is an awesome smorgasbord. Pick and choose what engages you.”

Serendipity: “Serendipity means a fortuitous accident. But for it to work, you must open your heart and head. Otherwise, you’ll walk right by.”

Stubbornness: “Life is much more enjoyable when you’re a participant rather than a spectator. That’s been my epiphany. Instead of going with the flow, I learned to become my own self-advocate and to have the stubbornness to push back…. Our lives are not so much determined by circumstances as by how we respond to them.”

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1 posts
Julia

Thank you for sharing Wendy's inspirational story!! Visualize . . . and realize. Believe . . . and be. Diagnosed with MS on 9/6/07, I can relate to her story and appreciate her attitude of rising above the challenges to embrace life so fully.

posted on 9/15/2009

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1 posts
sharon

M.S. Fibromyalgia, Immune deficiency disease, chronic fatigue syndrome , chronic pain syndrome etc are all complaints without any real diagnosis, cannot be proven by lab blood tests . We used to call these complaints pcychosomatic and not prescribe medication but refer to psychiatrists for psych meds...... When the medical doctors cannot prove what is wrong with the patient with the vague complaints fatigue, tiredness, depression, saddness, etc you need a diagnosis which cannot be proven such as M.S, Fatigue syndrome. Chronic pain syndrome. Immune deficiency , They are coded and the Medical Doctor can bill the coverage.  The conclusion is ????  Exercise, get a job, take your mind off your body get busy,do exercise and get out there in LIFE.    SAW.  NYC. N.Y.

posted on 9/16/2009

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1 posts
Lisa

MS is a definable diagnosis with a spinal tap.  The history, physical and MRI will tell the stage and extent of the disease.  The drugs now available are not interferon-type or chemotherapy-type.  There are issues to deal with but with a knowledgable and listening doctor a wheelchair is not in my forseeable future.  I do wear a WalkAide for the foot drop, cath on a regular basis, and do a daily injection.  I stick to my swank diet and am more a participant in my life and my family's life than I was 10 years ago.  MS research has come a long way baby.

posted on 9/16/2009

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7 posts
Nancy

"M.S. Fibromyalgia, Immune deficiency disease, chronic fatigue syndrome , chronic pain syndrome etc are all complaints without any real diagnosis, cannot be proven by lab blood tests . We used to call these complaints pcychosomatic and not prescribe medication but refer to psychiatrists for psych meds...... When the medical doctors cannot prove what is wrong with the patient with the vague complaints fatigue, tiredness, depression, saddness, etc you need a diagnosis which cannot be proven such as M.S, Fatigue syndrome. Chronic pain syndrome. Immune deficiency , They are coded and the Medical Doctor can bill the coverage.  The conclusion is ????  Exercise, get a job, take your mind off your body get busy,do exercise and get out there in LIFE.    SAW.  NYC. N.Y.By sharon on 9/16/2009 8:26:07 AM"Gee Sharon, I'm guessing you don't have MS or you would know better than to post that drivel here. Multiple Sclerosis is a very real disease. It is diagnosed using a criteria consisting of MRI, Lumbar Puncture with results showing Oligoclonal bands in the spinal fluid and two or more distinct relapses disseminated by time.Multiple Sclerosis attacks the central nervous system, eating away at the coating of fatty substance (myelin) covering the nerves. It's like stripping the covering off the wire in your electrical system. Nerve impulses are transmitted but never get received or the reception is slowed. It is a chronic, incurable disease and they still don't know what causes it. According to the CDC over 400,000 people in the US have MS today and they base that number on stats from the early 1980s! The number is closer to 1,000,000. It affects both sexes, does not discriminate by race, sexual orientation,socioeconomic status or what you did in high school.MS affects every person who gets it differently since no one can predict where the disease will attack next. Some people have a mild course and some are disabled soon after diagnosis. I would suggest you don't go running your mouth about MS until you know what you are talking about.I am appalled that Vocalpoint would let Sharon's post stand. It is hurtful and ignorant and does not belong here.

posted on 9/18/2009

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2 posts
Linda

You go mom!!! From a mother of 3,myself, I know how hard it can be just raising kids. I respect what you have done and are going to do. You've shown that you can do anything. Keep on going!!!!  Linda from Washington.

posted on 9/18/2009

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24 posts
Robin

 I agree with Nancy. The post by Sharon is cruel and should be pulled but unfortunately it is a free country and Sharon has the right to show her lack of compassion and understanding. I found Wendy's message to be inspirational and puts my minor problems in their place! Thank you Wendy for reminding me to remain grateful.

posted on 9/19/2009

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